Friday, May 24, 2013

To Be Born Again and Other Things of Consequences

"The other thing we often would rather not hear when we are dealing with intense sadness is that the only way out of it is through it. Sitting with our sadness takes the courage to believe that we can bear the pain and the faith that we will come out the other side. With courage, we can allow ourselves to cycle through the grieving process with full inner permission to experience it. This is a powerful teaching that sadness has to offer us—the ability to surrender and the acceptance of change go hand in hand."

On Mother's Day I got an email from a friend that said " I would have sent you a card but I couldn't find any that said Crappy Mother's Day, Life Sucks." I would have loved that card. I definitely appreciated the email. I am really touched by all the people who reached out to me that day in kindness and wished me a mother's day. No one said it in a celebratory way, but in a we love you and acknowledge you are the saddest kind of mother way. Thank You.

I recently got back from a trip to New York. I went into the trip aware of all the potential triggers since New York was one of the last places I was in when I was pregnant, and I stayed in the same apartment with the same people. Never would I have imagined going back there without my baby. Overall I think I did pretty well. It helped that I talked about it before hand with my support group and with my therapist and with some friends. I understand why people move away from places where traumatic events happened to them. I never drive by the hospital where I gave birth. I never sit in the same restaurants I ate when I was pregnant. Because those things didn't happen in Orlando. I am not triggered in the same way many of the women in my group are. I knew that going up to New York would be hard but I really wanted to be there for my best friend's graduation. The trick was honoring the joy I felt for her while simultaneously grieving. It helped that my other friend who lives in New York, in the same apartment wanted to talk about Mateo. She asked questions and since she is a labor and delivery nurse she had some insight. I don't like pretending he isn't on my mind. I don't like actively not talking about him when all I want to do is shout I miss my baby over and over for hours. I don't like not having the space to cry. Sometimes I want to cry. Sometimes I need to. So I think I did pretty well on this trip, I celebrated when I needed to and I cried when I needed to. By the last day I was ready to teleport into my bed and hold my Mateo 's blanket I usually sleep with. Still, I am glad I went and witnessed such an important moment in my best friend's life. It wasn't about pushing my feelings to be there for her, with grief- that's impossible. It was about stepping out of the narrowness of my pain and being able to feel the full spectrum of what it means to be alive. Just as I weep in sorrow, I weep with pride. I am allowed to feel all of the things I do with reverence instead of judgement.

I am becoming painfully aware of the cycles my grief manifests itself through. Sometimes I feel like I will have worked through one specific area only to find myself needing to process it again months later. Sometimes I miss who Mateo would be today. How old he would be. What those cute little toes would like. I'll spend days, sometimes weeks wishing I could see what he would look like today. Then at other times I miss future Mateo. All the things we would have done. The trips we were supposed to take. The milestones. Graduations and Weddings. The pride of raising a baby into a man. I'll spend weeks mourning that. Sometimes I miss my pregnancy. The kicking and the round belly. The glow. Even the heartburn. And times like right now I miss the Mateo I knew. The little guy I got to hold. The baby I stood next to in the NICU for those couple of days. He had the sweetest face. And my nose. He was so little and soft. That's the only version of him I'll ever get to touch. I can't describe what it feels like to want to touch somebody with every cell in your body. I want to touch him, to hold him more than I want absolutely anything else in life. I don't usually use absolutes because I feel that there are exceptions to most things. But I can say with all certainty that I would do anything to hold his little hand again. To kiss his little face. And not even in heaven would I get a chance to do that because that would be then a different experience. Time does not go back. No matter how much I want it to. If sheer heartbreak and desire could take me back there I'd live in that moment. Holding him in my arms and kissing his face. I'd create some sort of Groundhog's day time warp, where every day I would wake up to the one time I got to hold him. I often wish that I would have held him longer. That they would have had to pry him out of my hands. But I was just so tired. And so sad. And his little body was cold and I knew it was time to wrap him up in his little blanket and let go. But now I am so sad that I didn't spend more time with his body because it was the one and only time I ever got to hold my son. What an awful thing to know and not be able to fully understand in the moment. This is the one and only time you will ever hold your baby- here you go. What an awful thing to do to a person's heart.

How do you ever come back from that? I don't think you do. A new version of you is born the moment your child dies. I will never love with reckless abandonment. I will never have a future pregnancy free of stress and heartbreak. I will never not expect the worst, because sometimes the worst happens and sometimes it happens to me. The day the new me was born at the mercy of my child's death I lost all innocence. I can't tell you what it is like to look at the world through this lens. It as though I have sobered up and now I see that there is no limit to the pain one can endure. There is no limit to the love one can feel. I am now a little more serious, a little more dark. I am sadder behind the eyes. I fear I'll always be. I am tainted by my heartbreak and it is though I leave a small stain on everything I experience. Nothing goes through me without being touched by my loss. It is the filter of my life. I hear it becomes less intense. That the pain dulls some. But the changes are permanent. I was born again the day my baby died and now this is the life I live.

“So listen to this fleeting world, a star at dawn, a bubble in a stream, a flash of lightning in a summer cloud, a flickering lamp, a phantom, and a dream.”- Diamond Sutra Gatha


Sunday, May 5, 2013

International Bereaved Mothers Day: The Shittiest Remembrance Day Ever


Moments of Purposeful Solitude 

You need to pause at least once a day and spend a few moments breathing silently.  Use these moments to think and consciously separate the past from the present and future.  Responsibilities, obligations, unfinished business, family and friends can all survive without you while you take these moments for yourselfYou deserve this time away. You deserve to think peacefully, free from external pressure.  No problems to solve, hands to shake, or people to please.  Sometimes you need to make time for yourself, away from the busy world you live in that doesn't make time for you.

I have had a handful of conversations this week around the idea of purpose. I have had this restlessness in my heart lately. This feeling that I am not doing enough, being enough, trying enough- that I am not living up to my life's purpose. I know so much of it comes from having to redirect my life from "I should be a mom right now" to who am I right now? But even when I was pregnant I knew that while being a mom is the most important role I could play in my life, it isn't the only role I am meant to play. I am a daughter and an activist and an organizer and a friend and a writer and on and on. I am meant to do and be all in one, all at once. So these last couple of weeks of really feeling like I am not living up to my life's purpose have slowly but surely sent me towards depression. I find myself retreating, not calling people back, spending lots of time alone in my room knowing the possibilities are endless but the motivation is none. Grief does not just run its course. It isn't a bad cold. It does not have an expiration date. I have to work through it and depression is part of it.

After talking out this feeling of restlessness I came to a better place with purpose and where I am in life. I let go of this gran-dios  notion of how I am meant to be amazing and remembered that the only way that happens is to do amazing things every day. I give purpose to my life. What I do matters in every way that I make it so. The person that I bring to every situation and interaction, that person matters. The person I am when I am at work, the person I bring into support group meetings, the person who makes time to write this blog. I give those moments purpose therefore I give my life meaning. This transitional period in my life, this period of grief, I will honor that. I will be here with it so that eventually I can create purpose in other spaces of my life. Sometimes I resent having to take this time, feeling like I lost a year or two or however long this part of the process will take on top of losing my baby. Haven't I lost enough? And you know what? I am right. It fucking sucks. But its my life. And I will take a year or two or however long it takes to be in this part of the process. My life isn't on hold while I grieve. Grieving is a part of my life.Life is happening now. I am not losing this time, I am trying to make the most of it. This is life, welcome it.

Today is International Bereaved Mothers Day. What a shitty holiday. Quite possibly the worst remembrance day ever. I once heard the statistic that one in four pregnancies ends in child loss. Losing a child seems to be as common as having one except no one likes to talk about the loss part. No one prepares you when you are pregnant and everyone collectively sighs after the twelve week mark- all clear. Bullshit. It is never all clear. You can never collectively sigh. Life is fragile from the moment of conception until the moment you take that last breath. Health is guaranteed to no one and nature is as random in its selection as it seems to be cruel. Nature does not take into account values and ethics. It doesn't care about morals. That's why a 15 year old can have a completely healthy baby and leave it in a bathroom stall at her prom and the mothers in my group can spend their whole lives trying to bring just one healthy baby home. Nature doesn't care about fairness. It doesn't put mothers on a scale where the ones with better life circumstances all deserve children and all other moms need not apply. Nature doesn't know that I would have been a great mother to Mateo and it doesn't care. I am not owed his life anymore than the 1 out of 4 mothers whose pregnancies have ended in loss. I am not owed my child any more than any mother who has lost and loved. But God do I wish I were....

Next week is Mother's Day. What might also turn out to be another crappy remembrance day for me. It has been brought up in different groups and the question keeps coming up- Do I want to be honored that day? Am I not still a mother? Will I be hurt if no one wishes me a happy mother's day? Honestly, I don't know. I am a mother, even if I am the saddest kind of mother. So do I want people to wish me a happy mother's day? Sure. Do I want people to not wish me a happy mother's day? Ok. I'll welcome the kindness and forgive the rest.


This week for our support group we have been asked to write a letter to our children. I wrote Mateo a letter and had it places in his casket. I think sometimes of the worlds smallest skeleton lying in the world smallest casket and this long handwritten letter preserved in a way he never could be. In the letter I told him many things but mostly that I was sorry and that I love him. Boy, do I love him. In this very deep way I never knew possible and so therefore I hurt in this very deep way I never knew possible. So now I will write him another letter and share it in my support group. I am not sure what it will say, something along the lines of I love you...that's all I really have to say these days....